top of page

Patient Stories


Patient's with Huntington's Disease (HD), Spinocerebellar Ataxia 3 (SCA3, aka Machado-Joseph Disease), Multiple Myeloma (MM), and Frontotemporal Dementia (FTD), share their journeys since their diagnosis. 

 

​

Leadership

James' Story

In 2016, James, at the time 34, shares his journey with Huntington’s Disease and how greatly it has affected his life and ability to do the things that he loves. 

Naomi's Story

Naomi, a young woman with Machado-Joseph Disease (SCA3), shares her story on how the disease has impacted her life. 

Gail's Story

Gail, an attorney, was diagnosed with Refractory Multiple Myeloma in 2019, and shares her journey with the disease since then.

Juvenile Huntington's

Young patients with Juvenile Huntington's Disease, and their families, share their stories of Huntington's diagnosis and how the progression of the disease has forever altered their lives.

Frontotemporal Dementia

Mark was diagnosed in his 40’s with Frontotemporal Dementia. His wife shares their story on how Frontotemporal Dementia has affected their lives and marriage.

bottom of page